It strikes me that one of the things that is hardest about being a CF patient is not only being in the hospital and being away from the ones you love, but doing that during the holiday season. This past year I found myself hospitalized right before Christmas. I was miserable. The most festive time of the year … and I was in the hospital. This year I wanted to make a difference for all the inpatients on Rainbow 7.
Every one of us face obstacles in our life. Sometimes it’s something we can control, sometimes it’s something we can’t … here’s the thing though. Most of us will go through an obstacle or two in our life.
By now you know that one (of my many) life mottos is:
Life is too short to wear cheap paper masks.
In case this is the first time you are reading this, check out this post. I live much of my CF life by this motto. In changing hospitals however, there are a few things of myself I’ve taking with me … this motto is just one of them.
Do you have any words that you live by? Is there a slogan that typifies your life, worldview, or experiences? I have several … but for my CF life, there is one that is more of a mantra than any other ….
“Life is too short for cheap paper masks.” ~Katie Oskin
Making the change from one hospital to another is not easy. In February of 2016 after much heartache and soul searching, I made a very difficult decision to leave my treatment center of 35 years and my doctor of 20 years. Why? It’s a long story … but to summarize, the hospital wasn’t meeting my needs and has changed in such a way that being a CF adult in an all children’s hospital was becoming increasingly difficult.
I guess saying it’s “been awhile” is a bit of an understatement. It’s been since JUNE – JUNE! Wow. So, here’s a quick update on my health, what’s going on and how I feel about it all … well at least about the treatments.
Good morning! It’s been a long time since I wrote here on the blog. Alas, life & CF often get in the way. Today I’m going to show you a glimpse into my Bible. I’ve recently become aware of a newer trend called “Illustrated Faith” where you journal in your Bible. I’ve been doing this since Seminary, but not quite the way that is trendy right now.
There are few things that bother me enough to blog about them. This being said, I am at my wits-end. As a CFer, I take a ton of meds. Sure, I am allergic to many meds, but I also have side-effects from meds that don’t like me either. However, I’m in need of help from others who have taken this antibiotic and dealt with the metallic side effect.
It’s been a really long time since I wrote a post here on this blog. Sometimes I get so busy with life, taking care of myself, and my KatersAcres work that this poor little blog gets so neglected. My FaceBook page is a very active part of what’s going on in my life and with my CF, so be sure to check that out here. That being said, there are things about life that I am so blessed by every single day.