Life with CF is a hard, difficult, and daily battle that unless you live with it or live with someone who has CF it is one you can never possibly understand.
Words to Live By
Do you have any words that you live by? Is there a slogan that typifies your life, worldview, or experiences? I have several … but for my CF life, there is one that is more of a mantra than any other ….
“Life is too short for cheap paper masks.” ~Katie Oskin
Making the Change
Making the change from one hospital to another is not easy. In February of 2016 after much heartache and soul searching, I made a very difficult decision to leave my treatment center of 35 years and my doctor of 20 years. Why? It’s a long story … but to summarize, the hospital wasn’t meeting my needs and has changed in such a way that being a CF adult in an all children’s hospital was becoming increasingly difficult.
Long Time, No Write
I guess saying it’s “been awhile” is a bit of an understatement. It’s been since JUNE – JUNE! Wow. So, here’s a quick update on my health, what’s going on and how I feel about it all … well at least about the treatments.
Good morning! It’s been a long time since I wrote here on the blog. Alas, life & CF often get in the way. Today I’m going to show you a glimpse into my Bible. I’ve recently become aware of a newer trend called “Illustrated Faith” where you journal in your Bible. I’ve been doing this since Seminary, but not quite the way that is trendy right now.
There are few things that bother me enough to blog about them. This being said, I am at my wits-end. As a CFer, I take a ton of meds. Sure, I am allergic to many meds, but I also have side-effects from meds that don’t like me either. However, I’m in need of help from others who have taken this antibiotic and dealt with the metallic side effect.
It’s been a really long time since I wrote a post here on this blog. Sometimes I get so busy with life, taking care of myself, and my KatersAcres work that this poor little blog gets so neglected. My FaceBook page is a very active part of what’s going on in my life and with my CF, so be sure to check that out here. That being said, there are things about life that I am so blessed by every single day.
God is good, each and every day.
Brace yourselves … I’m about to speak out!
Thank you for thinking so much of me to include me in your challenge! I’m so happy to be chosen to help bring voice & awareness to ALS. However, for today, tomorrow, & every day in the future I’m going to sit this one out. That’s right, you read that correctly, I will not participate in the ALS IceBucket Challenge. For those of you who are not into social media or those who have missed the recent buzz about the IceBucket Challenge, you can read more here.
Ah yes, welcome back to my home away from home … the hospital.
Well, once again I found myself admitted into the hospital. Why? The same reason I usually end up being hospitalized: hemoptosis.
While I thought that the C25K would not only be good for my health but good for my lungs, after a variety of symptoms began to spring up (horrible lung cramps, hemoptosis, & other things), I decided that I will never again be a runner. BUT, I can still be an avid walker. As one of my best friends stated, not to worry, we will run the Pearly Gate 5K together when we get to Heaven. Amen my friend, Amen.